Wednesday, June 17, 2009

Charity Update



After more than 10 weeks - most of it spent in the PICU, little Charity is home with her family. Thanks to all who joined me in praying for her and her family. She truly is a miracle child!

America's Rockin' Roller Coast

Time for our annual 'pilgrimage' to Cedar Point in Sandusky, OH.















Yes, those are my girls in the front row of the coaster - the best seat for every coaster they ride and they rode them all! We ran from coaster to coaster from the time they let us in until our energy was zapped. At one point, we stopped to admire a really cool looking t-shirt and R got a little upset with us -- "Focus people, we've got coasters to ride."

I am not a coaster person but I do love to watch my family have fun. This is my kind of ride...and I don't tolerated it very well now that I am getting on in years:














When we first started going to Cedar Point, it was very difficult for me to let Miss R ride the big coasters. I was very worried about her safety and the level of difficulty some rides have for securing the rider. Well, let me tell you she has absolutely no problem securing herself and I am no longer anxious when she runs off to get in line. Coasters are another opportunity to promote independence!

Ride on!

Tuesday, June 9, 2009

Guess Who is Going...

To the Anglican Church in North America Assembly?







My oldest, K, will be the youth delegate for our diocese! She will be flying to the Dallas/Ft. Worth area (without me!) later this month to make history as the new province is launched.








The Anglican Church in North America unites some 100,000 Anglicans in 700 parishes in the U.S. and Canada into a single church after decades of error in The Episcopal Church caused the church to split.

The new church is primarily made up of two populations - Evangelicals and Anglo-Catholics. Here you find commentary from a representative of each group:

An Anglo-Catholic View

An Evangelical View

K is very excited and pouring over the Constitutions and Canons. I know she will work hard and represent us well!

The Greatest Show On Earth

We've been busy enjoying family life since Deacon Daddy graduated from seminary. The Ringling Brothers and Barnum & Baily Circus was recently in town were and we were Circus Celebrities!
















We had front row, center-ring seats. Circus celebrities get to ride around the floor for several acts and schmooze with the ringmaster.


















R's favorite acts -- anything up in the air...




















and the clowns!















It did take some time for R to get used to the noise level. The circus is so loud! Many children with Down syndrome (Ds) have sensory issues and Miss R does not enjoy loud events - even at 14. Today her sensory issues are so much better than when she was younger. During her early years it was impossible to take her to a movie - now she enjoys them. She watches TV with the sound low. Its only when she listens to CDs or her own personal DVD player with headphones does she listen with the volume up. I've always been very grateful that R has no hearing issues like many children with Ds. In fact, she hears better than her typically developing sister with selective hearing!

Poor K was not able to attend the circus with us. She was off to a Happening weekend - her fourth I think. She loves the Happening experience and is committed to being involved for as long as she can.

I had not heard of Happening until becoming Anglican. Happening is a weekend where participants (usually teens but adults can also participate) experience the love of our Lord as shown through the sacraments and the ministry of fellow students, clergy, and lay adults. Those who attend Happening are encouraged to take their faith back into the world to make a friend, be a friend, and introduce a friend to Christ. For those of the Roman Catholic tradition is is similar to Teens Encounter Christ.