Monday, November 8, 2010

Saturday, November 6, 2010

Find Support on Facebook

Come on over to Facebook!





Perhaps we can get some conversation going!

Sunday, October 31, 2010

Getting Out the Vote for Life

Have you voted yet?



I voted by absentee ballot a few weeks ago knowing I would be out of town on election day.

If you are interested in supporting pro-life issues consider supporting Americans United for Life.

I voted for life - all life is precious!

Wednesday, August 18, 2010

DownsEd Conference in Atlanta



The Down Syndrome Association of Atlanta is hosting a DownsEd conference next month - September 9 - 11. It is not to late to register!

Here is the brochure and registration info.

DownsEd has been instrumental in bringing up-to-date research into Down syndrome to professionals and families in a easily understood format. These events are so informative and inspirational - especially for homeschooling families. Do take advantage of this opportunity if you can!

Wednesday, April 21, 2010

My New E-book - Homeschooling Children with Down Syndrome







A compilation of years of research on how children with Down syndrome learn and part of a much larger project.

Just click on the button to view for free. I would love to hear feedback from you!

Tuesday, April 13, 2010

Homeschooling and Down Syndrome - The Reluctant (???) Learner

Part Two - The Child

In trying to discern what difficulties there might be in the learning environment which might result in reluctance or resistance, I always ask myself or might ask you the following questions:

Health

Are they feeling well? A child who is not feeling well is not receptive to learning. A child who does not get sufficient sleep will not be receptive to learning.

Are their eyes and ears healthy? Vision and hearing problems are common with Down syndrome and a great impediment to learning. Attention to these potential problems is needed with annual (minimum) physical exams.

Motivation

Is motivation a factor? Children with Down syndrome are known to have motivational issues when compared to typically developing children of the same age. From the time that our children with Down syndrome are born, they work hard to learn the skills they need – harder and longer than typically developing children. They are familiar with failure and need to be supported in learning with errorless teaching/learning to feel successful.

Is the child bored? Young learners with Down syndrome thrive on material given at a fast pace in an engaging manner. Keep it FUN!

Is the work provided close to the child’s developmental level? Working closely to his/her developmental level will make her feel successful and involved...and motivate her to come back for more!

Attention

Are attention deficits a contributing factor? Attention deficits are common in young learners with Ds. Incrementally increasing time and attention to task is worth the time and effort inside and outside of formal schooling is well worth the time and effort.

Is it hard for the child to sit still for learning? Alternate seat work with fine and gross motor activities. Keep any seat work meaningful. Lessons should be fairly short and fast paced. Keep the fun factor high!

Combining physical movement with learning can be quite helpful and enjoyable.
A friend of mine did “ball school” when her son with Down syndrome was young. He practiced sight word reading while bouncing a ball. This markedly increased his ability to learn new words.

Learning Profile

Children with Down syndrome have a known profile of strengths and weaknesses to consider in the homeschooling environment.

Am I teaching to my child’s learning strengths? Children with Down syndrome are primarily visual learners. Therefore, material presented should be accompanied by a visual aid.

What about processing deficits? Children with Down syndrome frequently have auditory processing difficulties. This makes learning by listening difficult. Again, visual cues are of the utmost importance.

Am I using language the child understands? As parents, we have a greater understanding of the words our children understand. We know they understand far more than they can express. New vocabulary should be specifically taught and clearly defined.

The Learning Environment

Are their any distractions? Is the house free from noises from the television, radio or adults or other children talking? Children with Down syndrome are easily distracted by noise and even visual stimuli.

The Learning Table

Learning does not necessarily happen at a table. In fact, much does not but I will refer to lesson time as work done at the table.

Is the work meaningful? Am I building on what the child knows – scaffolding new skills on top of what has been consolidated?

Is what they are working on to easy or to hard? Early learners with Down syndrome should be working close to where they are functioning on the developmental scale you are using – again, building on skills they already have.

Am I breaking down the task/concept in to smaller bits so that the child can understand the task/concept? With many concepts/skills, we have had to break them down into smaller steps and spend extra time on them. Breaking down skills/concepts gives meaning to the task as each step is mastered.

Am I providing enough repetition for the mastery of skills and concepts? Frequent input and plenty of review are the keys to consolidation of learning.

Am I giving them enough practice at new skills and concepts? Often a wide variety of materials, rotated throughout the week to reinforce new skills/concepts are necessary to consolidate learning.

Am I taking into consideration the child’s interests? In bringing the child’s interests into the learning environment, the most mundane of tasks takes on interest.
Is the curriculum a good fit? Concept oriented materials with a hands-on, visual approach works best for the early learner with Down syndrome.

Challenging Behaviors

Are behaviors getting in the way of learning? Often times, challenging or inappropriate behaviors are clues that you need to switch gears. Change the subject. Change the venue. Go for a walk but keep the child engaged!

Normal childhood naughtiness or the avoidance behaviors (cute but socially inappropriate behaviors) common to children with Down syndrome can disrupt the learning environment. Think about positive behavioural approaches vs. the more common parenting approaches which include punishments that are ineffective.

Sometimes behavior challenges are of a more serious nature. If so, those behaviors can be the greatest obstacle to learning a child with Down syndrome faces. If necessary, seek professional support.

Previous Learning Experiences

What previous learning experiences has the child had? Has the child been removed from the system recently? Was their previous learning environment traumatic? You wouldn’t believe the stories I’ve heard from families who have removed their child from the public school system.

The general rule of thumb for homeschooling families is that the child will need a month for every year in the system or adjust (some say recover) to homeschooling. I think it is safe to say a child with cognitive impairments will take longer.


In Closing

What seems to be reluctance or resistance on the part of the learner with Down syndrome can be the result of many complex issues – none of which are insurmountable. Persistence on you part will pay huge dividends!

Part One

Unbelievable

A Florida abortion provider loses his license for killing the wrong twin. After the healthy twin is killed, the baby boy with Down syndrome is terminated.

Tragic

Friday, March 19, 2010

Giveaways at Barbara Frank Online

My friend Barbara, over at Barbara Frank Online, is having a series of giveaways. Barbara and her husband have just republished a book called An 1890 Kindergarten Story Curriculum - The original author, a teacher, organized it into a school-year’s worth (September to June) of stories and object lessons for young children.

Barbara is a fellow homeschooling mom and author who also has a child with Down syndrome.

Ending tonight is a great book giveaway, How to Win Friends and Influence People by Dale Carnegie. Leave her a comment to win!

The next giveaway is How to Stop Worrying and Start Living by Dale Carnegie - another great read!

Please stop by Barbara's blog to enter!

Oh, and sign up for her free monthly newsletter while you're there!

Saturday, March 13, 2010

Homeschooling and Down Syndrome - The Reluctant (??) Learner

Part One - The Homeschooling Parent

Children with Down syndrome (Ds) aren’t really reluctant learners but it may seem that way - especially in the early years of their lives. What may appear to be reluctance or resistance is just the way they try to deal with the complexities of life with Ds and the obstacles they face in learning.

Over the years I've had quite a few questions on this issue. I would like to share a few tricks of the trade. Little things that have helped me that might help you. Some are quite obvious but some thought given to the obvious may garner some new insights as to the importance of what is obvious and how it plays into the homeschooling environment.

Children First
Children with Ds are children first. Children are fun and like to have fun. They are silly and playful so why not play along! My experience with a child with Ds is that there is more fun with the extra chromosome! The learning environment should be filled with interesting and engaging materials that help make learning FUN!

The Parent
As homeschooling parents, we may be overwhelmed by the obstacles to learning our children with Ds face. I’m here to tell you its all about baby steps. – your own and the child’s. Homeschooling a child with Ds is not that hard – it just takes time and effort to learn how the child learns, what obstacles they face and then implement what you have learned into the child’s learning environment. You will learn together to make your home the best learning environment for your child!

Educate Yourself
Be educated and informed. My archives hold a great deal of information on homeschooling and Down syndrome. The sidebar to the right has many useful links. The Riverbend Down Syndrome Support website is full of research related to how children with Down syndrome learn and also quite a bit of information on homeschooling children with Ds.

Commitment
We all go through a research phase when considering homeschooling our children with Ds. It is usually a time filled with anxiety – very normal! We wonder if we are capable of this huge responsibility. You are! Once the decision is made to choose the homeschooling option, commit yourself fully to it. Our children will sense if we are just experimenting and not fully committed.

Our Approach
Are we approaching homeschooling our child based on their needs? When I was in the research phase, I feel in love with a literature based method of homeschooling. Soon I found out that approach would not be best for Reagan. She does not learn well from listening due to auditory processing issues.

So I switched my thinking and approach to best suit her learning needs. As you know, children with Ds are visual learners. All information given verbally should be paired with a visual – gesture, sign, flashcards, picture cues, the written word etc.

Our Attitude
Our attitude is so important to the learning environment. Our attitudes are contagious! If we approach our day and school hours with a positive outlook and enthusiasm our children will too!

I am by nature a quiet, reserved person. Though I do tend to look at life with a positive outlook, Reagan demands more of me. She has turned me into a rather loud and boisterous cheerleader! We feed off of each other in our excitement and love for learning.

The Parent – Child Relationship
A warm, loving relationship between the parent and child is essential in the homeschooling environment. Nurture this and many of your battles are won! Children with Ds tend to be very sensitive to the feelings of others. Reagan is no different. She wants to please me

Latent Gifts?
Homeschooling moms might discover a few latent gifts! Homeschooling may develop some underdeveloped gifts waiting to blossom!

Patience
Doesn't every parent pray for more patience? Homeschooling a child with Ds requires patience. Learning often takes longer and requires many more learning trials than with typically developing children. Just remember that as you tire of teaching a skill/concept they are just beginning to get it. The joy that follows when a new skill is accomplished or a new concept is consolidated is glorious!

Creativity
Don’t let your perceived lack of creativity stop you from considering homeschooling! I don’t consider myself the creative type but am surprised over and over again by what is delivered to me (from above) that which is needed to get a concept across! New avenues of delivering more abstract material appear with perfect timing.

Part Two

Thursday, March 11, 2010

Homeschooling and Down Syndrome - Routines

Remember my post on the groove? A groove is simply defined as a set pattern or routine in one’s actions or thoughts. Routine and structure are important to young learners with Down syndrome. The groove allows them greater freedom and independence within the known routines.

Individuals with Down syndrome thrive with a set routine.

Routine and structure are also important to the homeschooling household. Without a routine in our home, little would get done.

Routines are important to typically developing children too!

Routines are important for all of us!

A few suggestions for families homeschooling a child with Down syndrome regarding routines and motivating the child to work within the routine:

Develop a routine and stick to it.
It is important that your child knows what to expect every day. Soon you’ll find that your child will remind you what is left to be done.

Devote yourself to the routine.
Most of the distractions to our day came from the telephone. Train yourself to avoid those distractions until what you need to accomplish as far as school is complete.

Make a visual for the child to refer to as the day progresses.
Initially, I would just use a daily schedule. As the child understand the rhythm of the day, move on to weekly and monthly schedules.

Prepare the child well ahead of time of any changes.
Again, the groove. Changes in routine may cause anxiety in the child with Down syndrome. There will much less anxiety if any changes in the daily routine are talked about and placed in the weekly schedule.

School is not a choice.
Reagan has never known that she has a choice as far as doing her school work. It is something that happens every day. She does have choices about the less important things in her life but reading, writing and arithmetic are to be done daily.

Plan ahead.
Every Sunday I take the time to plan out our week. I plan and I gather materials so that when it comes time to start our day, I’m not running all over trying to find things while my child loses interest.

Speaking of planning
Plan all those necessary errands and physical/dental/therapy appointments after school hours.

Make fun a priority
The daily routine should consist of things the child enjoys inside the work day. Choose the right high interest materials to make learning fun.

Learning should be meaningful.
To keep the child engaged, learning should target the child's interests and build on what they know. New skills and concepts should be broken down into smaller steps to build on. As the skills/concepts are practiced and consolidated, add another step.

Consider rewards
I know you’re thinking food but I am not! Sincere, appropriate praise will be genuinely appreciated and will go far in keeping with the flow of the day and the child's willingness to participate.

Use that wonderful parent – child relationship as a reward for you both. How about a little cuddle time on the couch with mom and a good book? Our visual learners all love a little computer time or a DVD for a good school day and a job well done.

Speaking of rewards.
Sprinkle rewards throughout the day as necessary. More frequent rewards may increase motivation to stay with the scheduled day.

Tuesday, March 9, 2010

The Pace

I have always loved an essay by Dennis McGuire, Ph.D, of the Adult Down Syndrome Center of Lutheran General Hospital in Park Ridge, Illinois called The Pace. One of the most valuable lessons Reagan (15 y.o. with Down syndrome) has taught me is to slow down and delight in the little things in life. Moving with her, at her pace, brings many new discoveries and joys. She sees the world and delights in it like it is new every day. What a gift!

While Reagan does not have obsessional slowness, an obsessive-compulsive disorder found in some people with cognitive impairments, she does move at her own pace. A pace where she can take in, process and react to her environment.

It is a slower pace. A pace where beauty flows and God is allowed in every moment. In fact, it is about living in the moment. There is a rhythm to it that I had not known before. Its almost magical.

Interestingly enough, I do not talk to her at a slower rate. We do our school work at a very rapid pace so that she does not get bored. Boring is another "B" word (along with brush and bath) around here. If Reagan senses a "B" word, watch out for avoidance behaviors and mild irritation!

Yes, I have know frustration with the pace...and I ask God to forgive me for being so selfish and small. The pace has blessed me abundantly and I am grateful.

So, we pace our days with her - planning a little more time during activities of daily living and outings to allow for her pace. My life is better for it. It lets us see the little things that might otherwise pass us by. Life it so much less stressful at Reagan's pace. The pressure is off and we are free to enjoy.

The pace - one of the many blessings of having a child with Down syndrome.

Saturday, March 6, 2010

Sinful?

It only tastes that way!

I've had a miserable, no good, rotten cold over the last several days. What's more comforting than a bowl of chicken soup when you're not feeling well?



Cream Cheese Chicken Soup

Adapted from My Kitchen Cafe

2 cups chicken, cooked and diced
1 large onion, finely diced
1-2 Tablespoons butter
4-5 reg carrots, diced
5-6 cups chicken broth
4-5 potatoes, finely diced
1 t marjoram, dried
1 t basil, dried
1/2 - 1 t garlic powder
1/2 - 1 t cayenne pepper (Optional)
4 T margarine or butter
4 T flour
2 cups milk
12 oz cream cheese, softened at room temperature

Saute onion in 1-2 T butter. Put onion in Dutch oven and add chicken broth, carrots, and potatoes. Add more broth if needed to cover vegetables. Add seasonings and bring to a boil, then simmer until veggies are tender (about ten minutes). Add cooked chicken.

Melt 4 T butter with flour. Stir for one to two minutes. Add cold milk all at once. Stir until thick and bubbly. Add cream cheese and stir until melted. Add cheese sauce to soup pot and stir until fully incorporated.

Season with salt and pepper.

I cook a LOT of soup during the Lenten season. This soup is a huge hit with the kids!

Lent - Examination of Conscience

One of the reasons I love Lent is that it is a season where I am invited to be introspective. I am introverted by nature but my calling to be a wife and mother keeps me focused on the external most of the hours of my days. In Lent, I have permission to go to the place where I get re-energized and focused with greater frequency –-- solitude!

So, in my solitude, I must be disciplined. My mind must not be allowed to wander. I must be focused on the task at hand. Each Lent we are invited to examine our conscience. God sees us as we are but do we see ourselves as we are? As broken people, we often tuck away our sins in a place where we don’t have to see them for what they are. Sometimes we don't see how our little sins become habit and affect those around us. Taking a closer look at that place, called a conscience, will hopefully help us to see what separates us from God.

So, what is a conscience? I like this definition "It is man’s sanctuary where each of us assesses himself and is assessed by God in terms of our faithfulness or lack thereof to God’s law….Prayerful self-reflection on our words and deeds in the light of the Gospel to determine how we have sinned against God."

What is sin? Sin is anything which offends God.

I like this passage from C. S. Lewis on the root of sin:

“From the moment a creature becomes aware of God as God and of itself as self, the terrible alternative of choosing God or self for the center is opened to it. The sin is committed daily by young children and ignorant peasants as well as by sophisticated persons, by solitaries no less than by those who live in society: it is the fall in every individual life, and in each day of each individual life, the basic sin behind all particular sins: at this very moment you and I are either committing it or about to commit it, or repenting it.”


The Problem of Pain, Chapter 5

It sometimes takes a great deal of courage to examine one’s conscience. For some, it is hard to go to the place where everything is laid bare and we are exposed for who we really are – not just what we want others to see.

It’s not really such a scary place if we invite God to go there with us. I like this prayer to invite God to be with me.

Being raised in the Roman Catholic denomination, I was called to do frequent examination of conscience in preparation for weekly confession. It was training that takes away the fear that some know when called to examine their conscience. It is almost second nature for me.

I go there knowing I am loved and that God desires that the distance that separates me from Him, caused by my broken, sinful nature, be vanished. I want to go there. With all my heart, I want to know His forgiveness and feel His closeness as I repent my sins.

There are many helpful resources on the internet for examining one’s conscience. Because I am called to be a wife and mother, my tool this year will is The Two Shall Become One: The Sacrament of Reconciliation and Marriage.

The Anglican Church calls confession "the ministry of reconciliation" and it is available for all who desire it. Those seeking absolution confess their sins before a priest or a bishop. I don't know many Anglicans who take advantage of this rite. Do you make it a habit?

I'll take the whole of Lent to ponder and pray -- and ask forgiveness. My joy will only be increased when Easter comes...

Thursday, February 18, 2010

The Homeschooling Community and Supporting Homeschoolers with Children with Special Needs

Matthew 25: 31-46

In every homeschooling community you will find homeschoolers educating children with special needs. You may not see a lot of them but they do exist.

Why don’t you see them?

They may not be comfortable bringing their child with special needs to events and gatherings due to social, behavioral and/or physical issues.

They may be using all their available energy to meet the needs of their family and their child with special needs.

They may not feel their children are accepted as fully participating members of the community.

Does the homeschooling community have a responsibility to nurture and support those homeschooling children with special needs?

The homeschooling community is primarily made up of Christian families. Jesus welcomed – even healed - many people with special needs. He gave them His time and attention. Why should the Christian homeschooling community be any different?

Many of these families are already a part of the homeschooling community. Their children with special needs should be welcomed into the community as every other child is welcomed.

Individuals with special needs are an often marginalized segment of society. They are often excluded because they look and/or act differently. Much of society doesn’t value those with significant needs and/or cognitive challenges. In fact, many with known genetic syndromes are aborted in utero. Babies created in Him image disposed of as useless tissue!

Let the homeschooling community be different. Embrace those with special needs and their families as Jesus would!

What you, as an individual, can do:

In every homeschooling community you will find many who would love to support those homeschooling children with special needs but aren’t sure what they can do.

1. Acknowledge we are dealing with more than the typical homeschooling family.

We acknowledge that every child is special but we do deal with challenges beyond the typical family which impact our lives, our marriages, our typically developing children and our relationships in the community. Often times, we work endlessly to find ways to meet the needs of our child with special needs and spend many more hours per day meeting that child’s needs to helping him/her reach beyond their challenges.

2. Keep a mental list of those you meet in the homeschooling community with children with special needs.

When you meet someone who homeschools a child with special needs, ask them if they know so and so who also homeschools a child with special needs. Those relationships can provide invaluable support.

3. Do not be afraid to approach the family.

Many people just don’t know what to say or do. Let us lead the way for you. As you get to know the family, you will probably be surprised by the blessings they know as a parent of a child with special needs.

You will discover that our lives are more than our child's diagnosis. We, as a family, are just like your family. Beyond the challenges we face, are the same dreams and hopes for our children...and we share many of the same problems.

4. Don't be afraid to inquire about the child’s special needs.

Most families are quite willing to share – they live with those special needs day in and day out.

5. Do not be afraid of the child with special needs.

They may look different or act differently but they are always children first. The nonverbal child will appreciate a smile, a light touch and friendly conversation – just like every other child. Some children will have ‘invisible’ special needs and are also in need of your support and understanding.

6. Educate your children about our special blessings and encourage friendships.

It is important for children with special needs to have friendships with typically developing children. Children with special needs learn a great deal from peer relationships. There peers will learn a great deal about befriending those who really are more like them than different and valuing all of God's creation.

7. Include the family openly and lovingly in homeschooling group activities.

Your kindness will be deeply appreciated.

8. Allow us the opportunity to educate your co-op, field trip group, and/or social group on the special needs of our child.

This may help others feel more comfortable with our children. We hope they will be valued for who they are and not their diagnosis…and included as fully as possible.

9. Mentoring opportunities.

Older typically developing children can be of great assistance to the family homeschooling a child with special needs during group activities. Having an older buddy guide them through those activities has many mutual benefits.

10. Do remember the siblings.

At times, people forget about the devoted siblings. Growing up alongside a child with special needs comes with many blessings but sometimes they need to be acknowledged for who they are individually. No one really wants to be known only as the sibling of the child with special needs.

11. Invite the parents out or over for an occasional social activity.

We need to just be grownups sometimes and away from our daily responsibilities.

12. If you are so called, offer respite care on occasion.

An hour or two on occasion will provide refreshment for the overwhelmed parent. Perhaps you have a teen willing to be trained in meeting the family’s needs for a short time. Helping with some light household tasks or entertaining a toddler will be huge for a family dealing with a child with special needs.

13. Do not feel sorry for us.

We don’t need sympathy when, for the most part, we are abundantly blessed! Most often we just need fellowship but there are episodic times of grieving for those raising children with special needs.

14. Empathy is genuinely needed at times.

Offer your ear and an open heart when we do struggle. Sometimes we just might need someone to listen. Even if you can’t truly understand, a compassionate heart might be all that is needed.

15. Pray for our families as you feel led.

We all need prayer but we might have different specific needs.


What can the greater homeschooling community do?

This needs to be a ministry to an often marginalized group of families. A little extra effort to support our families will go a long way.

Don’t expect those homeschooling children with special needs to have the time and energy to give to the greater community on a regular basis. They are too often overwhelmed by what they have been called to do – especially in the early years where they are dealing with their child’s diagnosis, seeking answers to why their child isn’t developing typically, frequent visits to physicians and/or therapists, dealing with behavioral challenges and meeting the needs of the rest of their family. This is the time when support is needed most.

Some other suggestions:
  • Acknowledge that families homeschooling children with special needs exist – then ask how you can support them.
  • Have special needs resources in your local homeschooling library or keep of list of print resources for referral.
  • Have links to special needs resources on the internet on your homeschooling association’s website.
  • Also include links to local, state and national support groups for those homeschooling children with special needs..
  • Seek out those who homeschool children with special needs as mentors for those inquiring about homeschooling their child with special needs.
  • Print an occasional article about homeschooling children with special needs in your newsletters.
  • Think about convention support. There are many speakers available to support the homeschooling and special needs community.


I promise you will be blessed in giving a little or a lot. When you reflect God’s love for all of His creation – especially those with special needs – you will discover a heart more inclined to love as Jesus calls us to love. Bless and be blessed!

Wednesday, February 17, 2010

Lent & Beyond

I've been thinking this week about the very gifted Anglican bloggers that I have become acquainted with around the blogosphere. I am very grateful for their talents and their ability to share how they bring our faith into the home and live the church year - every day, not just Sundays, Holy Days, feasts and commemorations.

When I served on our diocesan youth council, all the buzz at leadership conferences spoke to moving the church's teachings from Sunday school to the home - teaching families how to bring the faith home and live it. I've not seen the trickle-down yet from those conferences but I have found it all right here in the blogging community!

One of my favorite places to visit is a prayer blog called Lent & Beyond. If there is a resource out there Lent & Beyond will probably have it. If you need an answer to a question, it's probably there. Lent & Beyond is all about prayer and living the faith. It is my go to resource!

Karen has put together a Lenten round-up that includes most of my blogging friends and some I don't know but will get to know through their writing. Thanks to all of you who give so much!

Don't forget to visit Jessica's blog, Homemaking Through the Church Year, for some fabulous looking meatless recipes for the Lenten fast.

Friday, February 12, 2010

Looking to Lent

"Remember you are dust, and to dust you shall return." p. 265 BCP

These words frightened me as a child. Then, I just wasn’t capable of understanding the big picture that comes with Christ's sacrifice for our redemption. Yes, I am dust – really nothing except for who I am in Jesus Christ. Jesus, who came to earth to die for me and you so that we may know eternal life in Him.

Now, these words bring me joy, a subdued joy, but joy nonetheless. As I mature and can better understand just how much His life, suffering and death mean for humanity, I am awed at just how much God loves us. We don’t deserve salvation as wicked, sinful creatures but it is ours! How grateful I am for the Holy Eucharist that follows the Imposition of Ashes on Ash Wednesday!

I intend to keep Lent as the penitential season we know it to be with more solitude, prayer, self-examination and fasting – all that is intended to draw me closer to Him. I look forward to it with excitement even - for what will be revealed to me will be precious. I am going to keep a Lenten journal this year to record what I’ve learned and things I should meditate on.

Do you have a little quiet corner for solitude, prayer and study?



This is my little space.



Here, I will be spending time learning more about the Desert Fathers.

The Wisdom of the Desert by Thomas Merton

The Desert: An Anthology for Lent by John Moses

Bridges to Contemplative Living by Thomas Merton

I would also like to begin Dark Night of the Soul by St. John of the Cross.


Yes, I am dust but I hope to someday rise in glory with all those who have gone before me as a child of God.

Wednesday, February 10, 2010

FAQs Homeschooling Children with Down Syndrome and Other Special Needs

Over the years, I've been asked many questions about homeschooling children with special needs. I thought I would post the most frequently asked questions just in case you needed to know!

Is it legal to homeschool children with Down syndrome and other special needs?

Homeschooling is legal across the U.S. – even for children with special needs. The level of accountability varies state to state so it is good to know the law and level of accountability of the state in which you live.

Why do parents decide to homeschool their child with special needs?

Many families I know are already firmly ensconced in the homeschooling lifestyle when their child with special needs is born. Some are medically fragile. Others research homeschooling knowing their child will face obstacles to learning that may be better targeted at home. Some come to homeschooling because of difficulties they have experienced in the public school system

Don’t you need special training to educate a child with special needs?

Many parents I know that have turned to homeschooling with a degree in special education say that their degree is often a hindrance! In getting their degree, they are often given the big picture but it doesn’t help them homeschool their child with special needs.

Is there a special curriculum for homeschooling children with special needs?

The short answer is - not really. Curriculum choices should be based on the unique needs of each child. I would encourage you to look outside the homeschooling world for those children with significant special needs. There is a great deal out there to choose from.

The longer answer: Many known syndromes and disorders are associated with known behavioral traits. These traits give us a profile of strengths and weaknesses that we can target to create better learning environments. For example, children with autism are known to have communication and social deficits – part of their phenotype. Therefore, they need specific teaching in social skills presented primarily visually to impact learning.

Homeschooling children with special needs takes creativity in adapting what is available to the child's strengths and weaknesses.

How about special curricula for children with Down syndrome?

Down syndrome is the most researched of all causes of intellectual disability. Much is known about the strengths and weaknesses of children with Ds. Therefore, there are targeted interventions known to help them learn. Researchers are working to provide tools and curriculum to aid learning – much of it targeting early learners.

See:
Bob Jones University Press Adapted Curriculum (send me an e-mail for more information)
See and Learn
Numicon
Down Syndrome Foundation of Orange County Learning Program

Where do I go for information and support?

I would suggest you seek out others homeschooling children with the same diagnosis as your child. It is great to have face to face support so check out your local homeschooling association. The internet is also a great place to find others for support. Yahoo Groups has a support for almost anything you can think of! Just type homeschooling and ____ (fill in the blank with your child’s diagnosis) into the search engine and you will most like find a group to provide information and support.

How do I know if my child is learning?

You know your child best and you will become very familiar with what they know and what they are learning as you see them implement the knowledge they have learned. Many families use a developmental and/or academic skills inventory to help them set goals and display learning progress.

See:
VORT (my favorite)
The Brigance

Where do I start?

Right where you child is functioning – then build up the skills he/she has. Many families use one of the above developmental skills inventories to gauge where their child is functioning and choose curriculum that fits their learning style. Learning styles are important in children with special needs in targeting their individual learning needs.

What about professionals?

I believe professionals can be an invaluable resource in supporting homeschooling families – if they are well educated in the child’s diagnosis, targeted interventions….and have the child’s best interests at heart. We have found it most beneficial to search the private sector for professional help. Those within the system tend to be bogged down by the system and not as interested in the individual with special needs and their family.

Have you heard of the neurodevelopmental approach?

Many homeschoolers use neurodevelopmental consultants to develop very specific home programs for their children. Neurodevelopmentalists design a program to build on the neurological framework to support skill development. This in contrast to mainstream approaches which are skills based.

See:
NACD: National Association for Child Development
Hope and a Future Linda Kane
ICAN
: International Christian Association of Neurodevelopmentalists

Note: I am not necessarily recommending the neurdevelopmental approach (lack of peer-reviewed research) but many parents of children with Down syndrome and other special needs find their services beneficial - especially in the areas of reading and memory. Having not used this approach, I really have no opinion - just awareness of the support families get using their services.

Do I need legal protection?

Legal protection is a sensitive and somewhat controversial subject. Homeschoolers can become a target of well-meaning public school authorities and social workers. Homeschoolers with children with special needs can be particularly vulnerable. In my opinion the persecution of homeschoolers is pretty rare. Research the need carefully - no one wants to be caught unaware.

Home School Legal Defense Association
Pacific Justice Institute
National Home Education Legal Defense
The Rutherford Institute

What about socialization?

I think what most concerns most people considering homeschooling their child with special needs is not socialization (the process by which the norms and standards of our society are passed from one generation to another) but socializing – the gathering for communal activities where friendships are formed. I have found the homeschooling community THE most inclusive of communities and the opportunities for socializing are endless and not a problem.

Any other questions?


Tuesday, February 2, 2010

Deals for the Month of February from DownsEd

DownsEd is well known for research and practical support for those of us raising children with Down syndrome. Down Syndrome Education International is a wonderful resource and their website is full of information at the tip of a keystroke.

The deals for the month of February from DownsEd

"Woodbine House

Save up to 25% when ordering through the DownsEd USA Store on recommended books from Woodbine House include the latest (3rd) edition of Babies with Down Syndrome - ideal for new parents who have welcomed a baby with Down syndrome into their lives and available in English and in Spanish. Also available are the recently published Fasten Your Seatbelt - the first book written exclusively for teens with a brother or sister with Down syndrome - and Gifts 2 - How People with Down Syndrome Enrich the World - a collection of essays by siblings, grandparents, cousins, aunts and uncles, as well as mothers of older children.



Numicon Math Teaching Kits
Save up to 10% on selected Numicon number teaching kits when ordering through the DownsEd USA Store. Numicon multi-sensory math resources use structured shapes to represent numbers. This visual representation can help children with Down syndrome understand number concepts. Available kits include the Numicon Firm Foundations One to One Kit, Numicon Firm Foundations Class Kit, Closing the Gap with Numicon Kit, Numicon Kit 1 One to One, Numicon Kit 1 Class Kit, Numicon Kit 2 One to One and Numicon Kit 2 Class Kit.


POPs Resources
Save up to 10% on the POPS Reading Programm when ordering through the DownsEd USA Store. The POPS resources progress in small easy steps with extensive use of games to reinforce learning. Available packs include the (first) Red Elephant Series Packs 1-4. Also available is the the (second) Blue Elephant Series Packs 1-4.

Greenhouse Publications Interactive Reading Books
Save up to 10% on interactive reading books and other resources from Greenhouse Publications when ordering through the DownsEd USA Store. The interactive reading books utilize the power of visual strategies so beginning readers can learn to associate pictures with words. Students move and attach picture cards with hook and loop fasteners to match, identify, label, sequence and create sentences while learning to read. Available books include How Many?, What Color Is It?, I Go To School, Things I Do At Home, Action!, Sounds Good To Me, The Ups and Downs of Opposites and How Do I Feel?"


These are all recommended resources for children with Down syndrome and target their specific learning profile but tend to be on the expensive side as far as cost. Some things, like the ability to read when facing so many obstacles to learning, are priceless!

Sunday, January 31, 2010

Uninspiried - AKA Homeschool Burnout

A place I know very well. Late January and February bring me to this place where I feel totally uninspired – also known as burnout. I know I’m not alone. Many homeschooling moms experience a sense of burnout this time of year.

What is homeschool burnout?

Perhaps life is not quite so enjoyable. In fact, you might find all your emotions rather muted. Irritability is common. Also feeling exhausted, overwhelmed, discouraged or possibly even depressed. Symptoms will vary with each individual. The key is to be aware of the likelihood of its occurrence before it impacts the family and your homeschool.

What contributes to this sense of burnout?
For us northerners who face shorter, cloudy days, bitter cold, ice and snow, the weather plays a big part in our feelings of isolation from others. It is just a reality that social gatherings and field trips decrease because of the weather.

We’ve got half of the school year under our belts. Most of the homeschooling moms I know see this time as a time that we question what we have chosen to do with our children. We question our goals and the effectiveness our role as homeschooling mothers. We question the effectiveness of our choices. We ask ourselves questions and ruminate beyond the necessary and useful point. Are we doing enough? Are we meeting our goals? Do we need to make changes?

Most homeschooling mothers have high expectations for themselves. They often find there is never enough time in the day for all they want to accomplish – with school, parenting, discipline, laundry, cooking, cleaning etc. Homeschooling is a very task-oriented lifestyle lending itself to burnout.

Homeschooling Children with Special Needs

Taking the responsibility for homeschooling a child with special needs may intensify our feelings of burnout. After all, this is a huge responsibility – our efforts will impact our child's future functional competence. We don’t have a system to rely on or blame.

We often find ourselves comparing out children with others with a similar diagnosis in our own community whether it be in our homeschooling community or perhaps even a child in the school system. Are they doing better? Did I make the right choice? Would my child be better off in the system with all its supports?

Burnout - What can we do?

Burnout is a nasty place to be. The remedies:

1. Anticipate burnout.

Burnout is common in homeschooling moms. Anticipate it and you’ve almost won the battle!

2
. Take a good look at your priorities.

Be sure that you are in fact keeping them in the right order.
-Am I spending enough time with God in prayer and with His Word?
-Am I giving enough time to my husband? In giving you will receive.
-Are my children’s basic and educational needs being met?

3. After reassessing priorities, choose carefully where you get involved outside the home.

It is common for others to think just because you homeschool you are available to meet their needs and the needs of the community during school hours. Practice saying no or I'm sorry I just can't do it -- without explanations.

4. Quit second guessing God.

Most of us who are called to homeschool are led there by a loving Father. If He leads us here, He will provide all that we need to accomplish His goals for us and our family.

5. Remember why you homeschool.

Keep your goals for your children close and in the proper perspective. Are you homeschooling to instill proper morals and values? Are you homeschooling because you believe you and your family are contributing to the need for more strong soldiers for Christ? Do you think you can provide a better education for your children than the system can provide? Do you have a child with special needs who thrives in your homeschool environment? Worthy goals - keep your eye on the prize! I've graduated one well-rounded young lady who, with her natural gifts, will contribute greatly where ever she is planted. It was worth every second!

6. Take good care of you.

I cannot stress enough how important it is to take care of yourself. Eat right, exercise and get proper sleep. Your world will be a better place.

7. Don’t compare your children

Don't compare them with each other, family members or those in the community - especially if they have special needs. This is probably one of THE most destructive thing any parent can do. Compare them only to themselves. Are they working towards goals that are reasonable and obtainable? Are they making progress? Sometimes it is essential to look at the baby steps they might be taking toward a long sought after goal to find success. Find it and celebrate it!

8. Work at changing your thought patterns.

-If you are often finding yourself discouraged and down, try to focus on your blessings. Are you children healthy, clean, fed – physically, emotionally spiritually ready for learning? If that is the case, then learning will occur. They may not learn all that is on your agenda for the day but they will be open to the experiences and opportunities provided.
-Wake up with a thankful heart. Thank God for the opportunities that He will place before you as the day unfolds.
-Pray for your children and ask God to bless your day together.
-Thank God for them and the joy they bring – even when they are bickering.
-Verbalize all you find in the day to be thankful for. Soon you will find your children doing the same and the joy is multiplied!

9. Learn to live with dust bunnies.

One of the hardest things for me as a homeschooling mom was letting go of my need for a clean, tidy house all the time. I am a recovering neat freak. I am a recovering neat freak living with people who don’t see what the fuss is about. They are right of course.

10. Schedule flexibility.

That's right - if you are the obsessive-compulsive type like me who has a daily schedule, put a little flexibility in your schedule. Leave time for spontaneity and discover the joys!

11. Delight in the little things.

A cup of hot tea or hot chocolate with instructions that mama is taking a few minutes of time out and take it. My homeschooling friend, Amy, puts on her red tennis shoes every morning because they bring her a sense of delight – every day.

12. Make time for the things you enjoy and that refresh you.

Whether it be a good book or a hobby - do it.

13. Make a list of things to look forward to

-Schedule a date night with hubby – even if it has to be in your own home.
-How about a game night with the kids?
-An occasional mom’s night out with friends. Real life friends are important.
-A special dinner once a week with all your favorite foods.

14. Make a list of projects to take on.

I usually have a winter project because we spend more time at home. Even if it is just a closet or a few drawers, it is something outside the daily routine. It makes me feel productive in a different way. Involve the kids and it will be more fun! I don’t know if the kids will find my winter project fun – stripping the kitchen wall paper – but you never know.

15. Explore curriculum choices.

Most of us have homeschooling conventions on the horizon. Take the time to get excited about next year, investigate new options/curriculum choices and make plans on where you want to spend your time in the vendor hall.

16. Seek out the homeschooling community on the internet for support.

There are so many wonderful places to find support on the internet - way to many to list but you might try The Swap, The Homeschool Lounge, Heart of the Matter Online when you can't meet with your local homeschoolers for support and fellowship. I doubt you can find a homeschooler that has not experienced burnout. Let others share their ideas to get through this season.


Alas, I’m feeling inspired once again. I'm off to work through the list!

Tuesday, January 19, 2010

Wii Fit Plus

This is how we start our days now:



The girls received the Wii and as their 'big' Christmas gift this year. They were very excited and dreaming of all the gaming they could do but it only came with Wii Fit. I know - what mean parents! We don't do much gaming here outside of Nintendo DS...and that is limited.

I can't cite any studies about the effect of exercise as it specifically relates to cognition and Down syndrome but let me tell you my own little case study has shown dramatic results. We have always made frequent use of outdoor play and exercise, fun exercise videos, rotated gross motor activities in and around our school day but I just never started our day with exercise. Starting the day with the Wii Fit Plus has had a dramatic effect on how Reagan presents herself for learning. Her mood is better, her mind is more focused and her memory in math and reading is much sharper!

As an added benefit - she is losing weight!

Monday, January 18, 2010

Making a Case for Life

By Stephanie Wincik is on its way to my house! Well, hopefully it is on its way to my house - I just contacted the author and I'm so excited!



The review on Amazon:

"Whether you are a parent, grandparent, or newly pregnant, you know that most prospective parents hold high expectations for their offspring. Superior intelligence, physical beauty, excellent health, and outstanding athletic ability are just a few of the qualities we dream our children will be born with. Since contemporary society tends to value these qualities above all others, it is only natural for us to hope our children possess the attributes that will provide them with the greatest opportunity for a successful life. But what if your child arrives with a different set of qualities- a combination of traits that the world views as a disability? What if you are told that your child will have Down syndrome? What happens to your dream of producing the perfect child? Nothing need happen to your dream. You only need to alter your definition of perfection. In this book, we will explore the myth of the perfect child, along with a number of popularly-held yet erroneous beliefs about the negative impact of giving birth to a child with Down syndrome. At the same time, we will begin to develop a new perspective on which characteristics are truly the most desirable in a changing world. As our society becomes increasingly self-absorbed, materialistic, and violent, the new human beings entering the world will need a fresh arsenal of personal qualities if our planet is to survive and thrive. If we hope to reverse what appears to be a downward spiral for humanity, then kindness, generosity, compassion, gentleness, tolerance, and good humor- attributes, by the way, observed with remarkable consistency in people with Down syndrome- must surpass physical perfection in terms of the enviable traits we dream of seeing in our children. With only a slight shift in our perception, we can clearly see that the extraordinary individuals dismissed for centuries as disabled, actually have a vitally important role to play in the world, and indeed may even hold the key to our positive advancement as a human family."


The author is offering free shipping if you contact her via e-mail and mention “Chloe“.

Don't forget to visit and support International Down Syndrome Coalition for Life!