Friday, January 11, 2013

Heart Work

As I sat with other moms who have children with special needs last night, I pondered how our lives were different from those raising typically developing children.  Specifically, about the extraordinary heart work that burdens us at times.

They ponder difficult questions -  questions that most parents do not have to entertain for our children of significant intellectual disabilities.

Our children: 

Most likely will never live alone.

Most won’t drive a car.

They are more susceptible to others who would take advantage of them in evil ways.

The list goes on and on…

We still have dreams and hold on to the dreams of our children.

…and fears for their future.

As a group we ponder the questions:

What am I going to do when…

How will I handle this…

What about those who do not understand…

Tough questions with nebulous answers if any.  We will do our best with what we have to work with and the hope that the hand of God is displayed in our response.

We understand what the future holds to a certain degree.  We grieve and rejoice.  There are tears and laughter.

We are secure in knowing that the Lord will provide what He desires for our loved ones to complete their ministry on earth.

Yet our fears remain out of our own brokenness and the brokenness of the world.

I am honored to know these women.  I am blessed by their transparency and their profound faith.

For the reader who is isolated and feeling alone on this journey as the parent or caretaker of an individual with special needs please find a community in which you can share and be encouraged and strengthened for the journey.

Here is a great place to start


Barbara Frank said...

I'm sure you're a great blessing to the younger moms in that group! It can be so hard to help them understand that their child is truly a gift of God, something we learned from experience....


Amy said...

I try to be Barb! Sometimes I feel so unworthy...