Thursday, March 11, 2010
Homeschooling and Down Syndrome - Routines
Individuals with Down syndrome thrive with a set routine.
Routine and structure are also important to the homeschooling household. Without a routine in our home, little would get done.
Routines are important to typically developing children too!
Routines are important for all of us!
A few suggestions for families homeschooling a child with Down syndrome regarding routines and motivating the child to work within the routine:
Develop a routine and stick to it.
It is important that your child knows what to expect every day. Soon you’ll find that your child will remind you what is left to be done.
Devote yourself to the routine.
Most of the distractions to our day came from the telephone. Train yourself to avoid those distractions until what you need to accomplish as far as school is complete.
Make a visual for the child to refer to as the day progresses.
Initially, I would just use a daily schedule. As the child understand the rhythm of the day, move on to weekly and monthly schedules.
Prepare the child well ahead of time of any changes.
Again, the groove. Changes in routine may cause anxiety in the child with Down syndrome. There will much less anxiety if any changes in the daily routine are talked about and placed in the weekly schedule.
School is not a choice.
Reagan has never known that she has a choice as far as doing her school work. It is something that happens every day. She does have choices about the less important things in her life but reading, writing and arithmetic are to be done daily.
Plan ahead.
Every Sunday I take the time to plan out our week. I plan and I gather materials so that when it comes time to start our day, I’m not running all over trying to find things while my child loses interest.
Speaking of planning
Plan all those necessary errands and physical/dental/therapy appointments after school hours.
Make fun a priority
The daily routine should consist of things the child enjoys inside the work day. Choose the right high interest materials to make learning fun.
Learning should be meaningful.
To keep the child engaged, learning should target the child's interests and build on what they know. New skills and concepts should be broken down into smaller steps to build on. As the skills/concepts are practiced and consolidated, add another step.
Consider rewards
I know you’re thinking food but I am not! Sincere, appropriate praise will be genuinely appreciated and will go far in keeping with the flow of the day and the child's willingness to participate.
Use that wonderful parent – child relationship as a reward for you both. How about a little cuddle time on the couch with mom and a good book? Our visual learners all love a little computer time or a DVD for a good school day and a job well done.
Speaking of rewards.
Sprinkle rewards throughout the day as necessary. More frequent rewards may increase motivation to stay with the scheduled day.
Tuesday, March 9, 2010
The Pace
While Reagan does not have obsessional slowness, an obsessive-compulsive disorder found in some people with cognitive impairments, she does move at her own pace. A pace where she can take in, process and react to her environment.
It is a slower pace. A pace where beauty flows and God is allowed in every moment. In fact, it is about living in the moment. There is a rhythm to it that I had not known before. Its almost magical.
Interestingly enough, I do not talk to her at a slower rate. We do our school work at a very rapid pace so that she does not get bored. Boring is another "B" word (along with brush and bath) around here. If Reagan senses a "B" word, watch out for avoidance behaviors and mild irritation!
Yes, I have know frustration with the pace...and I ask God to forgive me for being so selfish and small. The pace has blessed me abundantly and I am grateful.
So, we pace our days with her - planning a little more time during activities of daily living and outings to allow for her pace. My life is better for it. It lets us see the little things that might otherwise pass us by. Life it so much less stressful at Reagan's pace. The pressure is off and we are free to enjoy.
The pace - one of the many blessings of having a child with Down syndrome.
Saturday, March 6, 2010
Sinful?
I've had a miserable, no good, rotten cold over the last several days. What's more comforting than a bowl of chicken soup when you're not feeling well?

Cream Cheese Chicken Soup
Adapted from My Kitchen Cafe
2 cups chicken, cooked and diced
1 large onion, finely diced
1-2 Tablespoons butter
4-5 reg carrots, diced
5-6 cups chicken broth
4-5 potatoes, finely diced
1 t marjoram, dried
1 t basil, dried
1/2 - 1 t garlic powder
1/2 - 1 t cayenne pepper (Optional)
4 T margarine or butter
4 T flour
2 cups milk
12 oz cream cheese, softened at room temperature
Saute onion in 1-2 T butter. Put onion in Dutch oven and add chicken broth, carrots, and potatoes. Add more broth if needed to cover vegetables. Add seasonings and bring to a boil, then simmer until veggies are tender (about ten minutes). Add cooked chicken.
Melt 4 T butter with flour. Stir for one to two minutes. Add cold milk all at once. Stir until thick and bubbly. Add cream cheese and stir until melted. Add cheese sauce to soup pot and stir until fully incorporated.
Season with salt and pepper.
I cook a LOT of soup during the Lenten season. This soup is a huge hit with the kids!
Lent - Examination of Conscience
So, in my solitude, I must be disciplined. My mind must not be allowed to wander. I must be focused on the task at hand. Each Lent we are invited to examine our conscience. God sees us as we are but do we see ourselves as we are? As broken people, we often tuck away our sins in a place where we don’t have to see them for what they are. Sometimes we don't see how our little sins become habit and affect those around us. Taking a closer look at that place, called a conscience, will hopefully help us to see what separates us from God.
So, what is a conscience? I like this definition "It is man’s sanctuary where each of us assesses himself and is assessed by God in terms of our faithfulness or lack thereof to God’s law….Prayerful self-reflection on our words and deeds in the light of the Gospel to determine how we have sinned against God."
What is sin? Sin is anything which offends God.
I like this passage from C. S. Lewis on the root of sin:
“From the moment a creature becomes aware of God as God and of itself as self, the terrible alternative of choosing God or self for the center is opened to it. The sin is committed daily by young children and ignorant peasants as well as by sophisticated persons, by solitaries no less than by those who live in society: it is the fall in every individual life, and in each day of each individual life, the basic sin behind all particular sins: at this very moment you and I are either committing it or about to commit it, or repenting it.”
The Problem of Pain, Chapter 5
It sometimes takes a great deal of courage to examine one’s conscience. For some, it is hard to go to the place where everything is laid bare and we are exposed for who we really are – not just what we want others to see.
It’s not really such a scary place if we invite God to go there with us. I like this prayer to invite God to be with me.
Being raised in the Roman Catholic denomination, I was called to do frequent examination of conscience in preparation for weekly confession. It was training that takes away the fear that some know when called to examine their conscience. It is almost second nature for me.
I go there knowing I am loved and that God desires that the distance that separates me from Him, caused by my broken, sinful nature, be vanished. I want to go there. With all my heart, I want to know His forgiveness and feel His closeness as I repent my sins.
There are many helpful resources on the internet for examining one’s conscience. Because I am called to be a wife and mother, my tool this year will is The Two Shall Become One: The Sacrament of Reconciliation and Marriage.
The Anglican Church calls confession "the ministry of reconciliation" and it is available for all who desire it. Those seeking absolution confess their sins before a priest or a bishop. I don't know many Anglicans who take advantage of this rite. Do you make it a habit?
I'll take the whole of Lent to ponder and pray -- and ask forgiveness. My joy will only be increased when Easter comes...
Tuesday, March 2, 2010
Thursday, February 18, 2010
The Homeschooling Community and Supporting Homeschoolers with Children with Special Needs
In every homeschooling community you will find homeschoolers educating children with special needs. You may not see a lot of them but they do exist.
Why don’t you see them?
They may not be comfortable bringing their child with special needs to events and gatherings due to social, behavioral and/or physical issues.
They may be using all their available energy to meet the needs of their family and their child with special needs.
They may not feel their children are accepted as fully participating members of the community.
Does the homeschooling community have a responsibility to nurture and support those homeschooling children with special needs?
The homeschooling community is primarily made up of Christian families. Jesus welcomed – even healed - many people with special needs. He gave them His time and attention. Why should the Christian homeschooling community be any different?
Many of these families are already a part of the homeschooling community. Their children with special needs should be welcomed into the community as every other child is welcomed.
Individuals with special needs are an often marginalized segment of society. They are often excluded because they look and/or act differently. Much of society doesn’t value those with significant needs and/or cognitive challenges. In fact, many with known genetic syndromes are aborted in utero. Babies created in Him image disposed of as useless tissue!
Let the homeschooling community be different. Embrace those with special needs and their families as Jesus would!
What you, as an individual, can do:
In every homeschooling community you will find many who would love to support those homeschooling children with special needs but aren’t sure what they can do.We acknowledge that every child is special but we do deal with challenges beyond the typical family which impact our lives, our marriages, our typically developing children and our relationships in the community. Often times, we work endlessly to find ways to meet the needs of our child with special needs and spend many more hours per day meeting that child’s needs to helping him/her reach beyond their challenges.
2. Keep a mental list of those you meet in the homeschooling community with children with special needs.
When you meet someone who homeschools a child with special needs, ask them if they know so and so who also homeschools a child with special needs. Those relationships can provide invaluable support.
3. Do not be afraid to approach the family.
Many people just don’t know what to say or do. Let us lead the way for you. As you get to know the family, you will probably be surprised by the blessings they know as a parent of a child with special needs.
You will discover that our lives are more than our child's diagnosis. We, as a family, are just like your family. Beyond the challenges we face, are the same dreams and hopes for our children...and we share many of the same problems.
Most families are quite willing to share – they live with those special needs day in and day out.
They may look different or act differently but they are always children first. The nonverbal child will appreciate a smile, a light touch and friendly conversation – just like every other child. Some children will have ‘invisible’ special needs and are also in need of your support and understanding.
6. Educate your children about our special blessings and encourage friendships.
It is important for children with special needs to have friendships with typically developing children. Children with special needs learn a great deal from peer relationships. There peers will learn a great deal about befriending those who really are more like them than different and valuing all of God's creation.
Your kindness will be deeply appreciated.
8. Allow us the opportunity to educate your co-op, field trip group, and/or social group on the special needs of our child.
This may help others feel more comfortable with our children. We hope they will be valued for who they are and not their diagnosis…and included as fully as possible.
9. Mentoring opportunities.
Older typically developing children can be of great assistance to the family homeschooling a child with special needs during group activities. Having an older buddy guide them through those activities has many mutual benefits.
At times, people forget about the devoted siblings. Growing up alongside a child with special needs comes with many blessings but sometimes they need to be acknowledged for who they are individually. No one really wants to be known only as the sibling of the child with special needs.
11. Invite the parents out or over for an occasional social activity.
We need to just be grownups sometimes and away from our daily responsibilities.
12. If you are so called, offer respite care on occasion.
An hour or two on occasion will provide refreshment for the overwhelmed parent. Perhaps you have a teen willing to be trained in meeting the family’s needs for a short time. Helping with some light household tasks or entertaining a toddler will be huge for a family dealing with a child with special needs.
We don’t need sympathy when, for the most part, we are abundantly blessed! Most often we just need fellowship but there are episodic times of grieving for those raising children with special needs.
Offer your ear and an open heart when we do struggle. Sometimes we just might need someone to listen. Even if you can’t truly understand, a compassionate heart might be all that is needed.
We all need prayer but we might have different specific needs.
This needs to be a ministry to an often marginalized group of families. A little extra effort to support our families will go a long way.
Don’t expect those homeschooling children with special needs to have the time and energy to give to the greater community on a regular basis. They are too often overwhelmed by what they have been called to do – especially in the early years where they are dealing with their child’s diagnosis, seeking answers to why their child isn’t developing typically, frequent visits to physicians and/or therapists, dealing with behavioral challenges and meeting the needs of the rest of their family. This is the time when support is needed most.
- Acknowledge that families homeschooling children with special needs exist – then ask how you can support them.
- Have special needs resources in your local homeschooling library or keep of list of print resources for referral.
- Have links to special needs resources on the internet on your homeschooling association’s website.
- Also include links to local, state and national support groups for those homeschooling children with special needs..
- Seek out those who homeschool children with special needs as mentors for those inquiring about homeschooling their child with special needs.
- Print an occasional article about homeschooling children with special needs in your newsletters.
- Think about convention support. There are many speakers available to support the homeschooling and special needs community.
Wednesday, February 17, 2010
Lent & Beyond
When I served on our diocesan youth council, all the buzz at leadership conferences spoke to moving the church's teachings from Sunday school to the home - teaching families how to bring the faith home and live it. I've not seen the trickle-down yet from those conferences but I have found it all right here in the blogging community!
One of my favorite places to visit is a prayer blog called Lent & Beyond. If there is a resource out there Lent & Beyond will probably have it. If you need an answer to a question, it's probably there. Lent & Beyond is all about prayer and living the faith. It is my go to resource!
Karen has put together a Lenten round-up that includes most of my blogging friends and some I don't know but will get to know through their writing. Thanks to all of you who give so much!
Don't forget to visit Jessica's blog, Homemaking Through the Church Year, for some fabulous looking meatless recipes for the Lenten fast.
Friday, February 12, 2010
Looking to Lent
These words frightened me as a child. Then, I just wasn’t capable of understanding the big picture that comes with Christ's sacrifice for our redemption. Yes, I am dust – really nothing except for who I am in Jesus Christ. Jesus, who came to earth to die for me and you so that we may know eternal life in Him.
Now, these words bring me joy, a subdued joy, but joy nonetheless. As I mature and can better understand just how much His life, suffering and death mean for humanity, I am awed at just how much God loves us. We don’t deserve salvation as wicked, sinful creatures but it is ours! How grateful I am for the Holy Eucharist that follows the Imposition of Ashes on Ash Wednesday!
I intend to keep Lent as the penitential season we know it to be with more solitude, prayer, self-examination and fasting – all that is intended to draw me closer to Him. I look forward to it with excitement even - for what will be revealed to me will be precious. I am going to keep a Lenten journal this year to record what I’ve learned and things I should meditate on.
Do you have a little quiet corner for solitude, prayer and study?
This is my little space.
Here, I will be spending time learning more about the Desert Fathers.
The Wisdom of the Desert by Thomas Merton
The Desert: An Anthology for Lent by John Moses
Bridges to Contemplative Living by Thomas Merton
I would also like to begin Dark Night of the Soul by St. John of the Cross.
Yes, I am dust but I hope to someday rise in glory with all those who have gone before me as a child of God.
Wednesday, February 10, 2010
FAQs Homeschooling Children with Down Syndrome and Other Special Needs
Over the years, I've been asked many questions about homeschooling children with special needs. I thought I would post the most frequently asked questions just in case you needed to know!
Is it legal to homeschool children with Down syndrome and other special needs?
Homeschooling is legal across the
Why do parents decide to homeschool their child with special needs?
Many families I know are already firmly ensconced in the homeschooling lifestyle when their child with special needs is born. Some are medically fragile. Others research homeschooling knowing their child will face obstacles to learning that may be better targeted at home. Some come to homeschooling because of difficulties they have experienced in the public school system
Don’t you need special training to educate a child with special needs?
Many parents I know that have turned to homeschooling with a degree in special education say that their degree is often a hindrance! In getting their degree, they are often given the big picture but it doesn’t help them homeschool their child with special needs.
The short answer is - not really. Curriculum choices should be based on the unique needs of each child. I would encourage you to look outside the homeschooling world for those children with significant special needs. There is a great deal out there to choose from.
The longer answer: Many known syndromes and disorders are associated with known behavioral traits. These traits give us a profile of strengths and weaknesses that we can target to create better learning environments. For example, children with autism are known to have communication and social deficits – part of their phenotype. Therefore, they need specific teaching in social skills presented primarily visually to impact learning.
Down syndrome is the most researched of all causes of intellectual disability. Much is known about the strengths and weaknesses of children with Ds. Therefore, there are targeted interventions known to help them learn. Researchers are working to provide tools and curriculum to aid learning – much of it targeting early learners.
See:
Bob Jones University Press Adapted Curriculum (send me an e-mail for more information)
See and Learn
Numicon
Down Syndrome Foundation of Orange
I would suggest you seek out others homeschooling children with the same diagnosis as your child. It is great to have face to face support so check out your local homeschooling association. The internet is also a great place to find others for support. Yahoo Groups has a support for almost anything you can think of! Just type homeschooling and ____ (fill in the blank with your child’s diagnosis) into the search engine and you will most like find a group to provide information and support.
How do I know if my child is learning?
You know your child best and you will become very familiar with what they know and what they are learning as you see them implement the knowledge they have learned. Many families use a developmental and/or academic skills inventory to help them set goals and display learning progress.
See:
VORT (my favorite)
The Brigance
Right where you child is functioning – then build up the skills he/she has. Many families use one of the above developmental skills inventories to gauge where their child is functioning and choose curriculum that fits their learning style. Learning styles are important in children with special needs in targeting their individual learning needs.
I believe professionals can be an invaluable resource in supporting homeschooling families – if they are well educated in the child’s diagnosis, targeted interventions….and have the child’s best interests at heart. We have found it most beneficial to search the private sector for professional help. Those within the system tend to be bogged down by the system and not as interested in the individual with special needs and their family.
Have you heard of the neurodevelopmental approach?
Many homeschoolers use neurodevelopmental consultants to develop very specific home programs for their children. Neurodevelopmentalists design a program to build on the neurological framework to support skill development. This in contrast to mainstream approaches which are skills based.
See:
NACD: National Association for Child Development
Hope and a Future Linda Kane
ICAN: International Christian Association of Neurodevelopmentalists
Note: I am not necessarily recommending the neurdevelopmental approach (lack of peer-reviewed research) but many parents of children with Down syndrome and other special needs find their services beneficial - especially in the areas of reading and memory. Having not used this approach, I really have no opinion - just awareness of the support families get using their services.
Do I need legal protection?
Legal protection is a sensitive and somewhat controversial subject. Homeschoolers can become a target of well-meaning public school authorities and social workers. Homeschoolers with children with special needs can be particularly vulnerable. In my opinion the persecution of homeschoolers is pretty rare. Research the need carefully - no one wants to be caught unaware.
Pacific Justice Institute
National Home Education Legal Defense
The Rutherford Institute
I think what most concerns most people considering homeschooling their child with special needs is not socialization (the process by which the norms and standards of our society are passed from one generation to another) but socializing – the gathering for communal activities where friendships are formed. I have found the homeschooling community THE most inclusive of communities and the opportunities for socializing are endless and not a problem.
Any other questions?
Tuesday, February 2, 2010
Deals for the Month of February from DownsEd
The deals for the month of February from DownsEd
"Woodbine House
Save up to 25% when ordering through the DownsEd USA Store on recommended books from Woodbine House include the latest (3rd) edition of Babies with Down Syndrome - ideal for new parents who have welcomed a baby with Down syndrome into their lives and available in English and in Spanish. Also available are the recently published Fasten Your Seatbelt - the first book written exclusively for teens with a brother or sister with Down syndrome - and Gifts 2 - How People with Down Syndrome Enrich the World - a collection of essays by siblings, grandparents, cousins, aunts and uncles, as well as mothers of older children.
Numicon Math Teaching Kits
Save up to 10% on selected Numicon number teaching kits when ordering through the DownsEd USA Store. Numicon multi-sensory math resources use structured shapes to represent numbers. This visual representation can help children with Down syndrome understand number concepts. Available kits include the Numicon Firm Foundations One to One Kit, Numicon Firm Foundations Class Kit, Closing the Gap with Numicon Kit, Numicon Kit 1 One to One, Numicon Kit 1 Class Kit, Numicon Kit 2 One to One and Numicon Kit 2 Class Kit.
POPs Resources
Save up to 10% on the POPS Reading Programm when ordering through the DownsEd USA Store. The POPS resources progress in small easy steps with extensive use of games to reinforce learning. Available packs include the (first) Red Elephant Series Packs 1-4. Also available is the the (second) Blue Elephant Series Packs 1-4.
Greenhouse Publications Interactive Reading Books
Save up to 10% on interactive reading books and other resources from Greenhouse Publications when ordering through the DownsEd USA Store. The interactive reading books utilize the power of visual strategies so beginning readers can learn to associate pictures with words. Students move and attach picture cards with hook and loop fasteners to match, identify, label, sequence and create sentences while learning to read. Available books include How Many?, What Color Is It?, I Go To School, Things I Do At Home, Action!, Sounds Good To Me, The Ups and Downs of Opposites and How Do I Feel?"
These are all recommended resources for children with Down syndrome and target their specific learning profile but tend to be on the expensive side as far as cost. Some things, like the ability to read when facing so many obstacles to learning, are priceless!